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Emily's Entourage
Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare ("nonsense") mutations of cystic fibrosis (CF), a genetic disorder that generally affects a person's lungs and digestive system. The foundation has raised over $1 million, largely from viral fundraising through universities and video campaigns. The organization also participates in exploratory research initiatives aimed at understanding and advancing towards a cure.
Emily's Entourage is named after Emily Kramer-Golinkoff, a 30-year-old woman with CF, who has been the focus of an increased trend of patients participating deeply into research on and advocacy for their own conditions. She was honored at the White House as a ''Champion of Change'' for "harnessing data to take account individual differences in people’s genes, environments, and lifestyles into account to improve patients’ health."
==History==
抄文引用元・出典: フリー百科事典『 ウィキペディア（Wikipedia）』
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